Everything in Taylor’s life ground to a halt during the birth of her daughter. Moments after her delivery, Taylor triggered an extremely violent chronic rare disease leaving her near death with multiple organ failure. Her diagnosis inspired her to work as a patient advocate helping others with their life-changing diagnoses. 

At the intersection of disability, motherhood and adapting to a new chronic illness, Taylor began writing for Substack Rare Disease Girl - which chronicles her personal journey of living with a rare medical condition and navigating life’s inevitable challenges. Her unique voice weaves in the harsh reality and challenges of her healthcare journey with the light, laughter, and hope of her survival. Taylor raises awareness about rare disease and offers a message of strength and resilience to others.

Taylor’s message of patient empowerment quickly gained momentum. In her article for the Huffington Post, I Spent Weeks Near Death In The ICU. Asking My Doctors To Do This 1 Thing May Have Saved My Life, Taylor shares how her medical catastrophes forever changed how she approaches her own healthcare. The article topped Apple News as the #1 story, garnering nearly 1 million impressions in 48 hours. 

Before her rare disease diagnosis, Taylor's acting career on stage and screen was marked by versatility and depth. A storyteller with disarming humor, Taylor has a particularly extensive background in comedy, having worked on Jimmy Kimmel Live, studying at Upright Citizens Brigade, traveling with musical comedy shows to the Edinburgh Fringe Festival as well as recurring on season 2 of HBO's Silicon Valley directed by Mike Judge, appearing on both seasons of Life in Pieces on CBS, and multiple episodes of Rachel Dratch’s Late Night Snack on TruTV. She also appeared in Feud: Bette and Joan directed by Ryan Murphy.

Additionally, Taylor has over a decade of experience in creative project management in media, including as former operations lead for LAist Studios, an award-winning podcast production studio.

Drawing on her personal story, Taylor Coffman has defied the odds and made a significant impact sharing her story already with the FDA, the American Society of Hematologists, and The Moth among others. In Taylor’s upcoming book chronicling the entire experience, she hopes to educate and advocate for patients, as well as to bring more awareness to rare diseases. Her talent, resilience, and dedication serve as an inspiration. She reminds us that even amidst the direst of challenges - growth, strength, laughter, and joy are within reach to us all - leading us to greater purpose and fulfillment. Taylor lives in Santa Monica with her husband Zach, daughter July, and rescue dog, Sunny. Read Less ^