ALS Advocate & Creator of the Ice Bucket Challenge
On March 13, 2011 Nancy’s 27-year-old son Peter was diagnosed with ALS, Lou Gehrig’s disease. Their world changed in a moment. They were told that there is no treatment or cure and the prognosis was two to five years. Since that day, Nancy has immersed herself in the ALS community. Through her education and work experience, she knew that the best way to become knowledgeable and currently informed on the disease was to get to know the players and the institutions that were on the forefront on this disease. In the past three years, Nancy has traveled and networked to the offices of CEO’s, senators, congressmen, top doctors and governmental authorities. She has testified in Washington DC to an FDA panel and has initiated and executed petitions regarding important issues affecting the ALS communities. Nancy has developed strong relationships with executives at both the local and national levels of ALS organizations involved in research, patient support, advocacy and fundraising. Read More >
Upon her son’s ALS diagnosis, Nancy Frates was presented with an unacceptable prognosis and the absence of any treatment for his disease. Nancy takes the audience on her family’s tragic yet beautiful journey, entwined with the origins of the historic ALS Ice Bucket Challenge. Her delivery is enhanced with a clarity and passion that only a mother can express while inspiring audiences to account for their own outlook on their life’s challenges.
"Nancy Frates is such a dynamic, engaging speaker! We felt very lucky to have her on stage as the closing speaker for the Planetree International Conference on Patient-Centered Care. Nancy presented her story to an international audience of over 700 attendees from 20 different countries. Our audience was inspired, motivated and deeply touched by her talk. Our attendees expressed their praise for Nancy by giving her several standing ovations during and after her keynote. Hands down the best closing speaker we have ever booked!"