Lauren "Lolo" Spencer
Actress, Model, Disability Advocate & Lifestyle Influencer
Lauren "Lolo" Spencer
Actress, Model, Disability Advocate & Lifestyle Influencer
Biography
At just 14 years old, Lauren “Lolo” Spencer was diagnosed with a neuromuscular condition and given five years to live. But instead of letting it define her, she made a life-changing decision—she would live fully and fearlessly. More than two decades later, she continues to do just that.
Now 37, Lolo is a Film Independent Spirit Award-nominated actress, disability advocate, lifestyle content creator, and public speaker. She made her acting debut as ‘Tracy’ in the award-winning film Give Me Liberty, which premiered at Sundance and earned her an Indie Spirit nomination. Since then, she has captivated audiences as ‘Jocelyn’ on Max’s The Sex Lives of College Girls and starred alongside Barbie Ferreira and John Leguizamo in Bob Trevino Likes It, a film inspired by a true friendship that won both the Narrative Feature Jury Award and the Audience Award at the 2024 SXSW Film Festival before its theatrical release in 2025.
Beyond acting, Lolo is a leading voice in disability advocacy. She is the author of Access Your Drive and Enjoy the Ride: A Guide on Achieving Your Dreams From a Person With a Disability and uses her platform to empower others. She was recognized as one of InStyle’s 50 Women Making the World a Better Place in 2021. Through Instagram and her YouTube channel, It’s Lolo Spencer, she shares real-life advice on everything from independent living and dating to fashion and confidence.
Her advocacy work earned her the Christopher Reeve Acting Scholarship. She also lends her voice to ‘Jazmyn “Jazzy” Jones’ on Disney Jr.’s Firebuds and has modeled for Tommy Hilfiger.
Drawing on her journey as an actress, advocate, and content creator, Lolo speaks with schools, universities, and organizations about resilience, disability representation, and living with confidence and authenticity. Through humor, honesty, and lived experience, she inspires audiences to challenge limitations and embrace their full potential. Lauren “Lolo” Spencer works in partnership with APB Speakers for speaking engagements worldwide.
Lolo continues to show the world that people with disabilities can live just as full, fearless, and fashionable lives as anyone else.
Speaker Videos
Meet Lolo, the style influencer with ALS that's changing fashion for people with disabilities!
Introducing Lauren "Lolo" Spencer
How Embracing Her Disability Made Lauren “Lolo” Spencer a Hollywood Star
Breakthrough: Creative & Culture, Lauren "LoLo" Spencer
Speech Topics
Resilience Redefined: Thriving Through Life’s Toughest Moments
In this uplifting and deeply personal keynote, Lauren "Lolo" Spencer shares how she transformed one of life’s most difficult diagnoses into a powerful story of purpose, joy, and perseverance. Diagnosed with ALS at just 14, Spencer made a decision early on to embrace life with courage rather than fear. Today, more than two decades later, she is a Film Independent Spirit Award-nominated actress, content creator, and leading voice in disability advocacy. Through humor, honesty, and heartfelt storytelling, she shows how resilience is not about avoiding hardship, but about choosing how we respond to it. Spencer challenges audiences to rethink limitations, embrace their own journeys, and find meaning and happiness in everyday moments. Her message is both inspiring and empowering: no matter what life brings, you can still build a life you love.
Audiences will learn:
How resilience is built through mindset, perspective, and daily choices.
Why joy and fulfillment are possible even in the face of adversity.
Practical ways to overcome challenges, embrace authenticity, and live with purpose.
Unapologetically You: Redefining Disability, Identity & Independence
In this bold, humorous, and eye-opening keynote, Lauren "Lolo" Spencer challenges the way we think about disability and what it truly means to live freely. As a passionate advocate for authentic representation, Spencer shares a candid look at her life, breaking down stereotypes and misconceptions that often limit how society views people with disabilities. Through personal stories and sharp insight, she highlights that disability is not a limitation but a lived experience that includes fashion, relationships, careers, independence, and joy. With warmth and confidence, she invites audiences to rethink outdated narratives and embrace a more inclusive understanding of identity. Spencer’s message is empowering for everyone: living fully means showing up as your whole self, without apology. This talk inspires audiences to move beyond assumptions and become part of a more inclusive, accessible future.
Audiences will learn:
How to challenge common stereotypes and rethink perceptions of disability.
Why representation, visibility, and authenticity matter in building inclusive communities.
Practical ways to foster acceptance, accessibility, and belonging in everyday life.
Stronger Together: The Transformative Power of Support & Mentorship
In this deeply moving and empowering keynote, Lauren "Lolo" Spencer shares how the strength of one relationship can change the course of a life. Diagnosed with ALS at just 14, Spencer faced unimaginable uncertainty, but she did not face it alone. With fierce advocacy and unwavering love, her mother became her first and most powerful mentor, helping her navigate complex systems, ask hard questions, and believe in a future beyond the diagnosis. Through heartfelt storytelling and moments of humor, Spencer reflects on how that foundation of support shaped her into the leader, creator, and advocate she is today. She expands this message to show how mentors, caregivers, educators, and peers all play a critical role in helping others not just endure challenges, but rise beyond them. Her story is a powerful reminder that when people feel seen, supported, and believed in, they become capable of far more than they ever imagined.
Audiences will learn:
How mentorship and support systems can shape confidence, resilience, and long-term success.
Why advocacy, encouragement, and belief are critical during life’s most challenging moments.
Practical ways to show up for others and help create environments where people can truly thrive.