Lauren "Lolo" Spencer
Actress, Model, Disability Advocate & Lifestyle Influencer
Lauren "Lolo" Spencer
Actress, Model, Disability Advocate & Lifestyle Influencer
Biography
What would you do if you were told as a teenager that your future was suddenly out of your control? That the life you imagined might not be yours to live? It is a question most people never have to answer, but for Lauren “Lolo” Spencer, it defines everything that follows.
At just 14 years old, Lolo was diagnosed with a neuromuscular condition and given five years to live, a moment that could have ended her story before it ever truly began. Instead, she made a life-altering decision to live fully, visibly, and without apology. More than two decades later, she has built a career and platform that challenges expectations, redefines possibility, and proves that adversity does not get the final say.
Now 37, Lolo is a Film Independent Spirit Award-nominated actress, cultural strategist, disability advocate, lifestyle content creator, and public speaker who sits at the intersection of disability, style, and social living. She made her acting debut as ‘Tracy’ in the award-winning film Give Me Liberty, which premiered at Sundance and earned her an Indie Spirit nomination. She has since captivated audiences as ‘Jocelyn’ on Max’s The Sex Lives of College Girls, appears as ‘Jazmyn “Jazzy” Jones’ on Disney Jr.’s Firebuds, and stars alongside Barbie Ferreira and John Leguizamo in Bob Trevino Likes It, a film inspired by a true friendship that won both the Narrative Feature Jury Award and the Audience Award at the 2024 SXSW Film Festival before its theatrical release in 2025.
For over a decade, Lolo has built one of the most authentic platforms in the disability lifestyle space, creating content and conversations that shift how the world sees and engages the disability community. She has partnered with leading brands including Tommy Hilfiger Adaptive, Adidas, Zappos Adaptive, Anthropologie, and Meta, bringing cultural credibility and real audience connection to every collaboration while helping organizations better understand an often overlooked but powerful audience.
As a speaker, she has taken the stage at Cannes Lions, VidCon, SeriesFest, The Estée Lauder Companies, and Amazon, delivering talks that are equal parts candid, funny, and transformative. Her message is clear: people who have been historically overlooked are not only consumers, but also creators and culture drivers who deserve to be designed for, marketed to, and invested in. Drawing from her lived experience navigating and challenging systemic barriers, she pushes audiences to think differently about access, representation, and what it truly means to build spaces where everyone can belong.
She is the author of Access Your Drive and Enjoy the Ride: A Guide on Achieving Your Dreams From a Person With a Disability and was named one of InStyle’s 50 Women Making the World a Better Place. Lolo has been featured in CNN, The Washington Post, Essence, HuffPost, Refinery29, Deadline, and FASHION Magazine, among others. Her advocacy has earned her the Christopher Reeve Acting Scholarship, further recognizing her impact across entertainment and disability representation.
Lolo does not show up to check a box. She shows up because she refuses to disappear, empowering others to take up space, own their story, and live boldly on their own terms.
Speaker Videos
Meet Lolo, the style influencer with ALS that's changing fashion for people with disabilities!
Breakthrough: Creative & Culture, Lauren "LoLo" Spencer
How Embracing Her Disability Made Lauren “Lolo” Spencer a Hollywood Star
Speech Topics
Finding Resilience When Life Gets Tough
When Lauren “Lolo” Spencer was diagnosed with ALS at 14, she made a vow. She would embrace life wholeheartedly and with courage. And that is exactly what she has done. Today, more than 20-plus years later, she is a Film Independent Spirit Award-nominated actress, disability advocate, lifestyle content creator and public speaker. Her message is simple: No matter what life throws at you—disability or not—you can succeed in everything you do. In this inspiring talk, Lolo shares her life story and how she has managed to succeed and, more importantly, find happiness each day despite what life has thrown at her. She reminds us all—disabled or not—that joy is a choice and that life is meant to be lived to the fullest. You’ll be inspired to embrace every moment, chase your dreams and never let anything hold you back.
Fly, Fierce & Free: Smashing Stereotypes About Disability
For Lauren “Lolo” Spencer, a passionate advocate for disabled representation, being disabled doesn’t need to limit you. You can live a full, independent life on your own terms. In this warm, humorous and honest talk, Lauren provides a candid and real inside look into the life of being a person with a disability and challenges stereotypes and misconceptions of the disabled—emphasizing that individuals with disabilities engage in all aspects of life—fashion, relationships, sex, careers and independence—just like everyone else. “People with disabilities can live their lives as fly and fashionable as anyone else,” Lolo said in an interview with CNN. Whether you live with a disability or not, this talk will leave you thinking, feeling and ready to be part of a more accepting and accessible future.
The Power of Support & Mentorship
In this profoundly moving and empowering keynote, actress, influencer, and disability rights advocate Lolo Spencer shares how her journey with ALS began not in isolation but with the fierce and unwavering advocacy of her mother. At just 14 years old, Lolo was diagnosed with ALS and given five years to live. The news was devastating. Lolo’s mother stepped in, asking the hard questions and demanding the care and attention her daughter deserved as they navigated this sudden change during her formative high school years. That foundation of love and support helped Lolo become the strong leader and passionate advocate she is today. Drawing from her inspirational journey, Lolo highlights how our mentors and personal support systems—whether they’re family members, teachers, caregivers, or friends—don’t just help us survive; they help us thrive. With authenticity and humor, she shares a powerful message about how we can become unstoppable when we are seen, supported, and celebrated.