Taylor Coffman
Actor, Author & Patient Advocate
Taylor Coffman
Actor, Author & Patient Advocate
Biography
"While the experience was a roller coaster, I did find my voice in that hospital bed."
"Taylor's story of her journey through near-fatal healthcare challenges showcases the best of The Moth, sharing hope and humor in the challenges life throws at us."
- Raghu Manavalan, Producer
"Taylor Coffman is an incredibly passionate and dedicated patient advocate. She has become one of the strongest voices online in raising awareness about rare disease. Taylor has inspired countless others by sharing her own patient journey following childbirth, with touching personal stories and relatable insights into the complex nature of medicine today. I have found Taylor to be a kind and warm individual, but also a fierce advocate, ready to break down barriers and battle the injustices in healthcare. Within just a few years as a patient advocate, Taylor has connected with physician leaders and patient advocacy groups, she has spoken at national meetings, maintains an active Substack (Rare Disease Girl), and she even wrote a book about her journey as a rare disease patient. Taylor is an incredible person, and she has a unique ability to translate complex medical jargon into simple language that everyone can understand."
- Cedars-Sinai
As an actor, author, and patient advocate, Taylor Coffman has captivated audiences with her unique blend of humor and authenticity—sharing her inspiring personal story of survival and resilience after an extremely violent and rare disease diagnosis.
Before her disease, Taylor's acting career on stage and screen was marked by versatility and depth. A storyteller with disarming humor, Taylor has a particularly extensive background in comedy, having worked on Jimmy Kimmel Live, studying at Upright Citizens Brigade, traveling with musical comedy shows to the Edinburgh Fringe Festival as well as a recurring role on season 2 of HBO's Silicon Valley directed by Mike Judge, Life in Pieces on CBS, and Rachel Dratch’s Late Night Snack on TruTV. She also appeared in Feud: Bette and Joan, directed by Ryan Murphy.
In addition, Taylor has over a decade of experience in creative project management in media, including former operations lead for LAist Studios, an award-winning podcast production studio.
Everything in Taylor's life ground to a halt during the birth of her daughter. Her delivery triggered atypical Hemolytic Uremic Syndrome, leaving Taylor near death with multiple organ failure. Defying all odds, she survived. That experience inspired her to work as a patient advocate, empowering others with their life-changing diagnosis.
Taylor’s message of patient empowerment quickly gained momentum. In her article for the Huffington Post, “I Spent Weeks Near Death In The ICU. Asking My Doctors To Do This 1 Thing May Have Saved My Life,” Taylor shares how her medical catastrophes forever changed how she approaches her own healthcare. The article topped Apple News as the #1 story, garnering nearly 1 million impressions in 48 hours.
At the intersection of disability, motherhood and adapting to a new chronic illness, Taylor began writing her Substack Rare Disease Girl, which chronicles her experience of living with a rare medical condition and navigating life’s inevitable challenges. In Taylor’s upcoming book, she hopes to educate and advocate for patients, as well as to bring more awareness to life with chronic illness. Bridging her comedy and project management expertise, she naturally weaves together the harsh reality of her difficult healthcare journey with light, laughter and the ultimate path to greater purpose and healing.
Speaker Videos
The Importance Doctor Provider Relationship
The Importance of Patient Advocacy
The Moth - Taylor Coffman - Theme "Home"
Speech Topics
How to Save Your Own Life: Becoming an Empowered Patient
There’s no doubt about it. Taylor Coffman was a picture of health. The kind of woman, she says, who would walk to the bottom of the Grand Canyon and out again with no problem. That all changed when an expected-to-be-routine delivery of her baby turned into a life-threatening ordeal involving multiple surgeries, a rare disease diagnosis and a fight for survival—one that might not have happened if she hadn't become her own advocate for her healthcare. In this inspiring and informational talk, Taylor shares her journey of becoming an empowered patient and how it significantly improved her chances for recovery. She'll also give you the tools so you can be an empowered patient, too. Playing an active role in your care is vital—it can mean the difference between life and death.
The Patient Revolution: The Growing Impact of the Patient Voice
Research shows that when patients are involved in their own healthcare, their health outcomes can be improved. Taylor Coffman, who has dealt with her own health crisis and rare disease diagnosis, embraces patient groups and observes some of the most important conversations about healthcare happening outside the medical industry. And it’s something we can all do. In this talk, Taylor breaks down a different version of healthcare as a patient and the power of working simultaneously with your doctors and patient groups to get the best outcome. Patients are shaping the future of health decision-making and taking back power. It’s a place where everyone wins.
Miraculous Adventures of Rare Disease Girl: Thriving With Chronic Illness
Taylor Coffman freely admits it: She’s a walking miracle. She survived atypical hemolytic uremic syndrome (aHUS) and a cascade of life-threatening complications during the birth of her daughter. Her organs were damaged, she had PTSD and postpartum depression, and she lost her job. But what she can definitively tell you is she is happier now than ever before. In this talk, Taylor tells her story of resilience, strength and the power of hope. And how she found joy and purpose—transforming her life in a way she never imagined possible. It’s a powerful message that even in the face of overwhelming challenges, there is potential for profound growth and happiness for anyone, and she’ll show you how to get started.
Once Upon a Terrifying Time: The Power of Patient Storytelling
Join Taylor Coffman as she explores the profound impact of storytelling in healthcare. Taylor's journey began with a healthy and active pregnancy that took a terrifying turn during childbirth, leading to life-threatening complications and a lengthy hospital stay. In this talk, Taylor underscores the importance of patient advocacy and the role storytelling plays in improving healthcare outcomes. She illustrates how personal narratives can foster connection, enhance care and drive systemic change. Her inspiring message is a call to action for everyone to harness the power of their experiences to create a more empathetic and effective healthcare system.
After Walking Through Fire: Post-Traumatic Growth
If there is just one thing that Taylor Coffman has learned throughout her years, it’s this: It’s possible to experience life-altering challenges—even trauma—and find beyond the pain something called post-traumatic growth. In this talk, Taylor shares how it is possible to thrive despite life's hardships, which in turn expands the capacity for joy. She also gives you the framework for building a better life—no matter what pain you've experienced—how to identify several key positive changes to identify Post Traumatic Growth and how to find a new purpose in life. “Maybe life has dealt you a bad hand, but that doesn't mean you can't win," she says.